Confidentiality & intellectual property

Confidentiality

• MIT regulations: MIT researchers conducting human subject research should consult the MIT Committee on the Use of Humans as Experimental Subjects (COUHES) in planning for data management and sharing.
• Health research regulations: Researchers need to adhere to privacy law regarding personal health information. See the HIPPA Privacy Rule, Information for Researchers.
• Informed consent: Researchers should include a provision for data sharing. See the guides to informed consent from the U.K. Data Archive and ICPSR.
• Maintaining confidentiality: Data made publicly available should not contain information that could risk the confidentiality of their participants.
  • ICSPR’s guide to confidentiality
  • J-PAL Guide to De-identifying Data
• Other useful tips:
  • Some archives, such as the ICPSR, will review your data for the presence of confidential information and provide infrastructure for restricted access to sensitive data.
  • Check your discipline’s academy or association for more resources. The Online Ethics Center for Engineering and Science provides a guide on responsible data management.

Intellectual Property

Sharing data that you have produced or collected yourself:

• While factual data is generally not copyrightable, particular expressions of data may be copyrighted or licensed.  Software, code, and other contextual information such as readME files or data documentation generally are copyrightable.  We encourage you to speak with MIT’s Technology and Licensing Office about research objects you have created and Ask Scholarly Communications regarding articles, monographs, and similar.
• Promote sharing and unlimited use of your data by making it available under an Open Data Commons or Creative Commons license. For software, consider one of the open licenses in the Software Package Data Exchange list of licenses.
• If you are uncertain as to your rights to distribute data, contact us for a consultation.

Sharing data that you have collected from other sources:

• Licensed data may have restrictions in the way it can be used or shared downstream.
• Many databases licensed by the MIT Libraries allow for educational and research use, and sharing limited portions of data.  For questions on terms of use for databases licensed by the MIT Libraries, Ask Scholarly Communications.